Logo Welcome
Family Caregiving  
>> Home >> Introduction >>Research Team>>Robin Cohen, Ph.D.
Family Caregiving for People at the End of Life


Robin Cohen

 

Robin Cohen, Ph.D.


Associate Professor, Dept Oncology, McGill University
Project Director, Lady Davis Institute



SMBD Jewish General Hospital,

Pavillion H
3755 Cote Ste Catherine,
Montreal, Quebec
Canada H3T 1E2


Phone: (514) 340-8222 ext 5676
Email: robin.cohen@mcgill.ca

Educational Background

PhD, Experimental Psychology, McGill University
Visiting Fellow, Addiction Research Center, National Institute on Drug Abuse, (U.S.A.)
Postdoctoral Fellow, Div. Palliative Care, Dept. Oncology, McGill

Research Interests

Palliative care; family caregivers; quality of life; quality of care; patients; pain; existential;
spiritual

Current Teaching

Graduate students in nursing
Medical students – summer research projects
Palliative care in cancer – graduate seminar

Leader, CIHR/NCIC Strategic Training Program in Palliative Care Research (www.mcgill.ca/cihr-pcresearch)

Current Research and Scholarships

Salary Award

Investigator (Dorothy J. Lamont Scientist); CIHR/NCIC; $350,000 (2001-2008).


Research Funding

Safety in home care: Perspectives from clients, family members, caregivers and providers. (A. Lang {PI}, K. Stajduhar, R. Cohen, A. Williams, A. Easty, S. St. Germain, J. Lachance); Canadian Institutes of Health Research; $159,711 (2007-2010).

An evaluation of Canada's Compassionate Care Benefit from a family caregivers' perspective. (Allison Williams and Valorie Crooks [Co-PIs], K.I. Stajduhar, D. Allan, R. Cohen, K. Brazil); Canadian Institutes of Health Research; $165,490. (2006)

Family caregiving at end of life: A women's health issue (Priscilla Koop [PI], M. deJong-Berg, R. Cohen, A. Williams, K.I. Stajduhar, D. Allan); Canadian Foundation for Women's Health; $8035.43 (2006-2007).

Improving quality-of-life and informing social policy in palliative care. (Robin
Cohen [PI], K.I.. Stajduhar and many others across Canada); The Centre for Behavioural Research and Program Evaluatoin of the National Cancer Institute of Canada; $119,405 (2006-2007).

Measuring the Quality of End of Life Care Provided in Inpatient Health Care Settings. (Kelli Stajduhar and Heather Cook [Co-PIs], D. Allan, D. Heyland, D. Bidgood, L. Norgrove, R. Cohen, A. Williams); Michael Smith Foundation for Health Research; $99,796 (2006-2008).

Quality of Life for Palliative Care Patients and Their Family Caregivers. (Robin Cohen [PI], A. Leis, G. Fyles, R. Viola, P. Porterfield, S. Brown, V. Fiset); National Cancer Institute of Canada; $555,659 (2001-2006).

Prognostic value of clinical correlates of cancer cachexia: A prospective multicenter, population-based study. (A. Vigano [PI], V. Baracos, R. Cohen, M.-A. Dalzell, E. Franco, N. MacDonald, J. Morais, S. Thirlwell); Canadian Institutes of Health Research (CIHR); $200,644 (2004-2007).

T.I.P.S: Tele-homecare in palliation study. (A. Stern, L. Librach [Co-PI's], T. Abernathy, R. Cohen, A. Gafni, C. Goldsmith, A. Jadad, A. Kirshen, L. Thabane); Ontario Ministry of Health Primary Health Care Transition Fund; $1,405,000 (2004-2006).

Developmental Activities Phase I (Tina Wolfson, Parminder Raina, and Susan Kirkland [PI’s], R. Cohen and many others across Canada); $1,744,000 (2004-2005).


Research Infrastructure Funding

Improving Quality of Life and Informing Social Policy in Palliative Care. (Robin Cohen [PI] and many others across Canada); The Centre for Behavioural Research and Program Evaluation of the National Cancer Institute of Canada; $88,000/year (2003-2006).

Strategic Training Program in Palliative Care Cancer Research. (Robin Cohen [PI] and others at McGill, University of Ottawa, and Université Laval); Canadian Institutes of Health Research/National Cancer Institute of Canada; $1,800,000 (2003-2009). Website: www.mcgill.ca/cihr-pcresearch

GRISIM: Groupe de recherche interuniversitaire en soins infirmiers de Montréal. (Celeste Johnston and Nicole Richard [PI’s], R. Cohen, and many others at McGill University and Université de Montréal); FRSQ/Newton Foundation/MSSS; $2,000,000 (2004-2008).

Family Caregiving in Palliative and End-of-Life care: A New Emerging Team. (Kelli Stajduhar, Robin Cohen [Co-PI’s], N. Chappell, P. Koop, A.M. Williams, D. Heyland); Canadian Institutes of Health Research (CIHR); $1,361,361 (2004 – 2009).

A multidisciplinary cancer pain research network to improve the classification, assessment, and management of difficult cancer pain problems. (N.A. Hagen, R.L. Fainsinger, P.M. Brasher [PI’s], R. Cohen and others across Canada); $1,363,586 (2004-2009).

Publications

Articles in peer-reviewed journals

Ahmed, S., Mayo, N.E., Corbiere, M., Wood-Dauphinee, S., Hanley, J., & Cohen, S.R. (in press). Rejoinder: response to commentary. Quality of Life Research.

Ahmed, S., Mayo, N.E., Wood-Dauphinee, S., Hanley, J.A., & Cohen, S.R. (in press). Towards an optimal health-related quality of life (HRQL) measurement strategy under conditions when response shift is likely to occur. Journal of Clinical Epidemiology.

Stajduhar, K.I., Allan, D.E., Cohen, S.R., & Heyland, D. (2008). Preferences for location of death of seriously ill hospitalized patients: Perspectives from Canadian patients and their family caregivers. Palliative Medicine, 22, 85-88.

Williams, A., Crooks, V., Stajduhar, K.I., Allan, D., & Cohen, R. (2006).
Improving Canada’s Compassionate Care Benefit: Recommendations from Family Caregivers Providing End-of-Life Care for Relatives with Advanced Chronic Illness. International Journal of Palliative Nursing, 12(9); 438-445.

Lee, V., Cohen, S.R., Edgar, L., Laizner, A.M., & Gagnon, A. (2006). Meaning-making and the psychological adjustment to cancer: development of an intervention and pilot results. Oncology Nursing Forum, 33(2); 291-302.

Lee, V., Cohen, S.R., Edgar, L., Laizner, A.M., & Gagnon, A. (2006). Meaning-making intervention during breast or colorectal cancer treatment improves self-esteem, optimism, and self-efficacy. Social Science & Medicine, 62(12); 3133-3145.

Ahmed, S., Mayo, N.E., Corbiere, M., Wood-Dauphinee, S., Hanley, J., & Cohen, S.R. (2005). Change in quality of life of people with stroke over time: True change or response shift? Quality of life Research. [Stimulated Commentary], 14; 611-627.

Ahmed, S., Mayo, N.E., Wood-Dauphinee, S., Hanley, J., & Cohen, S.R. (2005). Using the Patient-Generated Index to evaluate response shift post-stroke. Quality of Life Research, 14, 2247-2257.

Macdonald, M.E., Liben, S., Carnevale, F.A., Rennick, J.E., Wolf, S.L., Meloche, D., & Cohen, S.R. (2005). Parental perspectives on hospital staff acts of kindness and commemoration after a child's death. Pediatrics, 116, 884-890.

Ahmed, S., Mayo, N.E., Corbiere, M., Wood-Daughinee, S., Hanley, J., & Cohen, S.R. (2005). Change in quality of life with people with stroke over time: True change or response shift? Quality of Life Research, 14, 611-627.

Lee, V., Cohen, S.R., Edgar, L., Laizner, A.M., & Gagnon, A. (2004). Clarifying “meaning” in the context of cancer research – a systematic literature review. Palliative and Supportive Care, 2, 291-303.

Ahmed, S., Mayo, N.E., Wood-Dauphinee, S., Hanley, J.A., & Cohen, S.R. (2004). Response Shift Influenced Estimates of Change in Health-Related Quality of Life Post-Stroke. Journal of Clinical Epidemiology, 57(6), 561-70.
Link Here

Cohen, S.R., & Leis, A. (2002). What Determines the Quality of Life of Terminally Ill Cancer Patients from Their Own Perspective? Journal of Palliative Care,18, 48-58. Link Here

Cohen, S.R., Boston, P., Mount, B.M., & Porterfield, P. (2001). Changes in Quality of Life Following Admission to Palliative Care Units. Palliative Medicine, 15, 363-371. Link Here

Cohen, S.R., & Mount, B.M. (2000). Pain with Life-threatening Illness: Its Perception and Control are Inextricably Linked with Quality of Life. Pain Research & Management, 5(4), 271-275.

Cohen, S.R., & Mount, B.M. (2000). Living with cancer: “Good Days” and “Bad Days” – What produces them? Can the McGill Quality of Life Questionnaire distinguish between them? Cancer, 89(8), 1854-1865. Link Here

Cameron, A.J.R., Brown, K.S., Cohen, S.R., Leis, A.M., Manske, S., Olson, K., & Ritvo, P.G. (1997). Critique of the National Cancer Institute of Canada’s Framework for Cancer Control. Cancer Prevention and Control, 1, 361-365.

Cohen, S.R., MacNeil, C., & Mount, B. (1997). Well-being at the End of Life. Part 2. A Research Agenda Concerning Delivery of Care From the Patient’s Perspective. Cancer Prevention and Control, 1, 343-351. Link Here

Cohen, S.R., Bultz, B., Clarke, J., Kuhl, D., Poulson, J., Baldwin, K., & Mount, B.M. (1997). Well-being at the End of Life. Part 1. A Research Agenda for Psychosocial and Spiritual Aspects of Care From the Patient’s Perspective. Cancer Prevention and Control, 1, 334-342.
Link Here

Cohen, S.R., Mount, B.M., Bruera, E., Provost, M., Rowe, J., & Tong, K. (1997). Validity of the McGill Quality of Life Questionnaire in the Palliative Care Setting. A Multi-center Canadian Study Demonstrating the Importance of the Existential Domain. Palliative Medicine, 11, 3-20.
Link Here

Cohen, S.R., Hassan, S.A., Lapointe, B.J., & Mount, B.M. (1996). Quality of Life in HIV Disease as Measured by the McGill Quality of Life Questionnaire. AIDS, 10(2), 1421-1427.
Link Here

Cohen, S.R., Mount, B.M., Tomas, J.J., & Mount, L.F. (1996). Existential Well-being is an Important Determinant of Quality of Life: Evidence From the McGill Quality of Life Questionnaire. Cancer, 77, 576-586.
Link Here

Boisvert, M., & Cohen, S.R. (1995). Opioid Use in Advanced Malignant Disease: Why Do Different Centers Use Vastly Different Doses? A Plea for Standardized Reporting. Journal of Pain and Symptom Management, 10(8), 632-638. Link Here

Cohen, S.R., Mount, B.M., Strobel, M.G., & Bui, F. (1995). The McGill Quality of Life Questionnaire: A Measure of Quality of Life Appropriate for People with Advanced Disease. A Preliminary Study of Validity and Acceptability. Palliative Medicine, 9, 207-219.
Link Here

Cohen, S.R., Steiner, W., & Mount, B.M. (1994). Phototherapy in the Treatment of Depression in the Terminally Ill. Journal of Pain and Symptom Management, 9(8), 534-536.
Link Here

Cohen, S.R., & Melzack, R. (1993). The Habenula and Pain: Repeated Electrical Stimulation Potentiates Analgesia While Lesions are Without Effect on Formalin Pain or Morphine Analgesia. Behavioral Brain Research, 54, 171-178.
Link Here

Cohen, S.R., Kimes, A.S., & London, E.D. (1991). Morphine Decreases Cerebral Glucose Utilization in Limbic and Forebrain Regions While Pain Has No Effect. Neuropharmacology, 30, 125-134. Link Here

Cohen, S.R., & Melzack, R. (1986). Habenular Stimulation Produces Analgesia In the Formalin Test. Neuroscience Letters, 70, 165-169.
Link Here

Cohen, S.R., & Melzack, R. (1985). Morphine Injected Into the Habenula and Dorsal Posteromedial Thalamus Produces Analgesia in the Formalin Test. Brain Research, 359, 131-139.
Link Here

Cohen, S.R., Abbott, F.V., & Melzack, R. (1984). Unilateral Analgesia Produced by Intraventricular Morphine. Brain Research, 303, 277-287. Link Here


Reviews, book chapters, books

Cohen, S.R. (in press). Quality of life assessment in palliative care. In E. Bruera, I. Higginson, C. von Gunten, & C. Ripamonti (Eds.) Palliative Medicine. London, England: Edward Arnold Limited.

Nikoletti, S., & Cohen, S.R. (2004). Quality of Life and the Cancer Journey. In D. Porock & D. Palmer (Eds.), Cancer of the Gastrointestinal Tract: A Handbook for Nurse Practitioners (pp. 1-38). London, England: Whurr Publishers Limited.

Cohen, S.R. (2003). Assessing Quality of Life in the Terminally Ill. In R.K. Portenoy & E. Bruera (Eds.), Issues in Palliative Care Research (pp. 231-242). New York: Oxford University Press.

Cohen, S.R. (2001). The McGill Quality of Life Questionnaire. In J. Maltby, C.A. Lewis & A.P. Hill (Eds.), Commissioned Reviews on 300 Psychological Tests (pp. 590-594). Lampeter, Wales: Edwin Mellen Press.

Cohen, S.R. (2001). Defining and Measuring Quality of Life in Palliative Care. In E. Bruera & R.K. Portenoy (Eds.), Topics in Palliative Care (Vol. 5, pp. 137-156). New York: Oxford University Press.

Mount, B.M., & Cohen, S.R. (1997). Quality of Life in the Face of Life-threatening Illness. In S. Strack (Ed.), Death and the Quest for Meaning (pp. 137-152). New Jersey: Jason Aronson Inc.

Invited book chapter under editorial review

Cohen, S.R. Quality of life assessment in palliative care. In E. Bruera, I. Higginson, C. von Gunten & C. Ripamonti (Eds.), Palliative Medicine. London, England: Edward Arnold Limited.

Government reports

Cohen, S.R., Frisch, S., Deschamps, M., Penrod, J., Plante, H., Bellavance, M., & Lauzon, N. (April 2001). Evaluation of the MUHC-CLSC project to develop an integrated continuum of palliative care services. Ottawa, ON: Health Canada Health Policy and Communications Branch.